UPDATE - 6-3-20 - Hoping everyone is remaining safe, healthy, and are practicing social distancing. Once again, regretfully we do not have much to report as Michael's Rehab Hospital remains on Locked Down. We have not been able to be with Michael since 3/13/20.
As I had shared, this is the first time in the last 6 years that we have
not been with him every day. I
cannot express how deeply saddened and how stressful this is for us, as we can
see that because of Michael not being mentally stimulated every day his awareness
is regressing. On the days that we do get to briefly see him via Facetime, he
is most often asleep. We believe that his days and nights are now mixed up.
Which further stresses us, as we believe because of his isolation that he may
just be laying there awake at night staring at the ceiling which is causing him
to sleep during the day.
This situation was further magnified as My wife was
allowed to accompany Michael in the ambulance last week for his monthly visit
to see his neurologist, however Michael slept through the entire round trip to Brooklyn
including the doctors injecting his medication into his Pump.
Sadly, all of this leads us to believe that now
all our prior efforts to help him recover may be lost.
We pray everyday that this
situation may change soon, and we can at a minimum, visit with him every day
and shortly after that resume taking him home for his daily home visits.
Again, as always, we so appreciate your continued
support, prayers and hoping that for us all that this terrible situation comes
to end soon. Be safe, stay healthy and be careful.
Regards
Mom and Dad Bartolo
Regards
Mom and Dad Bartolo